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European Organization for Rare Diseases
Results: 221

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21	World Rare Disease Day 28 February 2011 World Rare Disease Day is a global event held annually on the last day of February. Its main objective is to raise awareness of rare diseases and their impact on not only the kids Add to Reading List Source URL: www.awch.org.au Language: English - Date: 2014-01-18 05:49:10 Medicine Lipid storage disorders Rare Disease Day European Organization for Rare Diseases Fabry disease Orphan drug Disease Genetic Alliance UK Health Epidemiology Rare diseases
22	[removed]Fac sheet OD[removed]:04 Add to Reading List Source URL: www.rare-diseases.ru Language: English - Date: 2014-11-27 09:27:35 Pharmacology Clinical research Drug discovery Orphan drug European Medicines Agency Orphan Drug Act Pharmaceutical industry European Organization for Rare Diseases Rare disease Pharmaceuticals policy Pharmaceutical sciences Health
23	Australian Paediatric Surveillance Unit Add to Reading List Source URL: www.apsu.org.au Language: English - Date: 2012-12-26 17:49:18 Rare diseases Health Science Epidemiology European Organization for Rare Diseases David Sillence
24	Joint Action Coordination Issues Kate Bushby Coordinator of the EUCERD Joint Action: Working for Rare Diseases HEALTH INFODAY ON JOINT ACTIONS 07 November 2014, Luxembourg Add to Reading List Source URL: ec.europa.eu Language: English - Date: 2014-11-11 09:01:25 Rare disease National Institutes of Health Medicine Health European Organization for Rare Diseases
25	[removed]285750308610013652500 FOR IMMEDIATE RELEASE Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2015-02-04 16:32:21 Rare diseases European Organization for Rare Diseases Medical diagnosis Health Medicine Rare Disease Day
26	3086100169545001237615[removed]FOR IMMEDIATE RELEASE Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2015-01-30 15:51:17 Rare Disease Day Rare diseases European Organization for Rare Diseases National Institutes of Health National Organization for Rare Disorders Disease Global Genes Project Orphan drug Health Medicine Epidemiology
27	Microsoft Word - 2011_Tbilisi_IId_Confer_Rare _Diseases_EN.doc Add to Reading List Source URL: www.csma.org.ua Language: English - Date: 2011-11-04 07:14:53 Health economics Rare Disease Day European Organization for Rare Diseases Public health Chronic Spinal muscular atrophy Genetic Alliance UK Health Epidemiology Rare disease
28	PRESS RELEASE Commissioner Andriukaitis Opens Event on How Patients Influence Rare Disease Policy Making 24 February 2015, Brussels – EU Commissioner for Health & Food Safety Vytenis Andriukaitis heads an exciting age Add to Reading List Source URL: download.rarediseaseday.org.s3.amazonaws.com Language: English - Date: 2015-02-27 10:34:13 Epidemiology Rare Disease Day Cystic fibrosis Caregiver Health Rare diseases European Organization for Rare Diseases
29	----PRESS RELEASE---- 8th edition of Rare Disease Day “Living with a Rare Disease: Day-by-day, hand-in-hand” 27 February 2015: 28 February 2015 is Rare Disease Day. EURORDIS and the 30 National Alliance rare disease Add to Reading List Source URL: download.rarediseaseday.org.s3.amazonaws.com Language: English - Date: 2015-02-27 11:11:15 Rare disease European Organization for Rare Diseases Medicine Science Disease Epidemiology Health Rare Disease Day
30	EUROPEAN RARE DISEASES DAY: TOP FACTS ON EU ACTION A disease or disorder is defined as rare in the EU when it affects less than five in every[removed]citizens. Yet, because there are so many different rare diseases – be Add to Reading List Source URL: ec.europa.eu Language: English - Date: 2015-02-27 04:27:48 Epidemiology Pharmaceutical sciences European Organization for Rare Diseases Orphanet Pharmaceutical industry Genetic Alliance UK Orphan drug Health Science Rare diseases

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